U.S. Roadtrip Gratitude Tour

October is Breast Cancer Awareness month

October 2015 – I decided to attend the Metastatic Breast Cancer Conference in Boston and thought it would be a great opportunity to see friends and family that supported me during my time of need, to thank them and show them how well I’m doing now. I’ve lived past my expiration date…twice… and currently enjoy the unattainable miracle of NED… No Evidence of Disease. For now, like everyone else with metastatic breast cancer, I live scan to scan.

So I put together this monster road trip… 7000 miles, 22 stops, over 5 weeks… as a gratitude tour. Thing is, there were a few long stretches where I didn’t know anyone. People started asking me to stop and say hi to friends of theirs that were struggling and so I put it out there to my breast cancer friends that I could stop by and give them a hug if they wanted…

“I have this searing memory of being hooked up to Carbo and Taxol, enduring radiation to three parts of my body at once, and thinking… if this is living, then I don’t want to live. And some other part of me (I’ll call her Hope), grabbed me by the lapels, shook me, and said… “Others have done it, you can do it.” And it got me through a crucial day. Sometimes that’s all we need… to know there can be a future that isn’t as bleak as the present moment.

I’m setting out tomorrow from Colorado on a 7500-mile road trip, a gratitude tour, that will take me through the midwest to the conference in Boston and down the eastern seaboard, in to Asheville, and south to Florida, through New Orleans, Austin, and home. I will be stopping and staying with friends and family who have stood by me from afar and visiting some people who are currently struggling. It occurred to me to put it out there to my lovely new Facebook friends that if they or someone they know, that is on my loop, needs a hug and a shot of encouragement, I could stop by for a brief visit.”

I got dozens of responses! I think this might possibly be the best idea I have ever had! My gratitude tour has turned into a way that I can give back for the miracle that I am living and to celebrate those that are currently entrenched in their struggle.

First stop of Gratitude Tour – Boulder, Colorado

Visiting my first healing angel in Boulder… June visited me when I was going through hell in Seattle, has placed her loving, healing hands on me, and always sent so much love and light from afar.

Minneapolis

Stop two on my gratitude tour… these lovely angels were with me at Burning Man when I lost the use of my legs and didn’t know what was wrong with me… that I was full of tumors that had split my sacroiliac joint apart. They packed me up and shipped me out of the grueling desert and came to see me when I was struggling for my life in Seattle.

They constantly sent me healing love and light. The little one was then a bun in the oven and a reason for me to fight… I had to meet him! And what a precious soul he is!!!

My first stop leaving Minneapolis… Marsha ministers at her church and she made a beautiful present of a prayer shawl to me that the women in her church knit and infuse with love and prayers. I feel blessed!

Winona

So, I think this road trip and the idea to meet with some of the amazing women also dealing with cancer is possibly the best idea I’ve ever had. It was so great to meet Pam and her sister Val who is lovingly caring for her. Rock on, Winona babes!

“Best idea ever, thanks for stopping on your way through. Wonderful meeting Kaiulani on her Gratitude tour. I’m refueled and encouraged to share a hug with a brilliant shining soul sister ♡ Check out her blogs if any of you want to know her amazing story. I had never met Kai before until today, she is a giver and a liver.

She posted she was taking a road trip, the gratitude tour, and if anyone was on her route she would love to stop by and meet friends and give a hug. I was happy when she messaged me yesterday that she’d be passing through Winona today. Blessings and love to you Kai as you make your way east. Safe travels and love and light to you and all you meet on this journey. ♡ THANK YOU” – Pam

(Alas, Pam has passed.)

Chicago

I’m so impressed by the cancer survivors I meet. Through it all, they remain positive. Pam and Tamara hadn’t known each other before, but when they both wanted to meet up with me as I passed through Chicago, we found a place in the middle and had a wonderful dinner. It was lovely meeting you both. Thank you.

“I can’t tell you how wonderful and inspiring it was to meet up with you and also Tamara. Your positivity, and loving spirit is so encouraging and brings hope. ♡♡♡” – Pam

“Thank you! for making a stop in Chicago and for spending the evening sharing your insights and energy. It was so good to meet you.. and to meet Pam too! Safe travels — may the wind be always at your back.” – Tamara

 

Detroit

I was honored to celebrate Cheryl’s last chemo with her and her loving hubby. Thank you, Jana, for introducing us!

“Kai, I thought you would like to know that this story is touching so many lives!! Thank you from the bottom of my heart for stopping in on your gratitude tour to share your love and story with me and my hubby too… Facebook brings people together in so many ways. I met Kai on FB through a mutual friend. Jana thought we would connect well. Kai is a true cancer warrior. 3 years clean, she had stage IV cancer thought her body including 9, yep 9, brain tumors.

She is traveling across the nation, over 7,000 miles on a Gratitude road trip. And was going to be in Michigan. She came and brought love and light to me at my last chemo treatment today. And a story of HOPE. Thank you my new friend. What an experience!❤. There are no coincidences in life. Our God amazes me, every day❤he is the true meaning of the word AWESOME!!” – Cheryl

“This is one the LARGEST most BEAUTIFULLY happy blessings in my life to date! That my dear soul sister of many moons who I hold so dear to my heart Kaiulani Facciani,, has now held my dear soul sister warrior Essante gal friend Cheryl close during her struggle with cancer and was with her at the close of her chemo treatment… Love both of these beautiful women! I cannot hold back my emotion in tears of joy…to share and see that this magic is in our day to day of what can be life… I am lost for more words.  ♡♡♡ Love you both.” – Jana

also Detroit

I love the midwest! Elizabeth and Uncle Larry know how to take a licking and keep on ticking!

Kai, Thank you from the bottom of my heart for stopping by on your tour to share your story & love with us. I pray one day we get to meet again. Safe travels, my friend, you are amazing. – Elizabeth

 

 

Ohio

Kathleen is fighting her cancer naturopathically… and winning! Fascinating story. I so enjoyed dinner with her and Tom, her amazing support system.

“What a treat meeting with this sweet woman last night… Kaiulani a wellness consultant, a survivor, and a wonderful person.” – Kathleen

(Alas, Kathleen has passed.)

 

 

New York

And this lovely Kathleen is a mets sister who is so confident in her ability to heal, she is starting a retreat to nurture fellow metastatic BC battlers in her lovely new farmhouse in rural New York… what a huge heart this woman has.

“Kaiulani and I… a random visit from CO via everywhere. I feel as though my life has changed. I’ve realized that from cancer I’ve lost some friends, but the ones that turned up and came instead of turned around and left are in my life for a very important reason. You all know who you are.” – Kathleen

(Alas, Kathleen has passed.)

Cape Cod

Coco is a two-time breast cancer survivor. I provided support for her from afar after being introduced by a mutual friend. When it hit the fan for me, she was there for me as one of my most ardent cheerleaders. I am so grateful to meet her in person after all these years of on-line friendship and support.

“Kai you are an AMAZING woman for helping so many other women with breast or metastatic breast cancer! I’m HONORED for your visit last week and for your loving support throughout my cancer ordeal ! Thank you SO much for sharing your process and strength with us all! Much love to you.” – Coco

Metastatic Breast Cancer Conference – DanaFarber Institute – Boston, MA

Can I just say how amazing women with metastatic breast cancer are? And how soothing it is to spend time with people who face the same death sentence as me every day with such joy and hope and bravery. When you are in the same room with hundreds of them, the whole is definitely more than the sum of the parts. I am in awe of the indomitable spirit!

Stage IV Metastatic Breast Cancer is a terminal diagnosis. Some of us prefer to think of it as a chronic illness. Either way it’s no fun. But there’s always lemonade to be made…

(Alas, all three of these beautiful new friends I made that night have passed.)

The Snarling Wolf…

 

Manchester

Cindy is an old friend who has lost many loved ones to cancer. She is the eye of the hurricane… always a center of calm love and support amidst the chaos that sometimes surrounds her. When I was going through treatment, she sent me so much love and support as well as the comfiest, most beautiful blanket to cuddle in. A walk in the woods and on the beach with her has been so wonderful. Frosting on the very beautiful cake that is my life.

 

 

the Hamptons, New York

My dear friend Emma is a breast cancer survivor who started the Emma Jacobs Foundation (Taking Initiative to Survive) and helps scores of women who face the challenges that a breast cancer diagnosis poses. When I was first  diagnosed in 2007, she took me under her wing. She and Patrick, hosted me and supported me through my many visits to Houston and the roller coaster ride I endured. Now, they have a lovely home in the Hamptons and it was so great to experience their new life with them on my Gratitude Tour.

 

Manhattan

Four museums in one day! The Guggenheim, the Met, Natural History, and MOMA. Going to the Whitney tomorrow. Two Broadway shows. Oh, Manhattan you’ve made me deliciously exhausted! I’ve eaten Korean, Thai, Indian, Mexican, Italian, and Greek.

It is impossible to not fall in love with mankind while visiting the Metropolitan Museum of Art. Throughout the millennia, all over our world, artists have wrested such beauty from such pain… battles waged, lives torn, love lost. I am dwarfed by the grandeur and scope of their collective consciousness.

And it is impossible to not fall in love with our universe, our planet, and its non-human inhabitants while visiting the Museum of Natural History. I can only hope our burning desire to create overcomes our innate propensity to destroy.

Museums and Creativity

Visiting museums and looking at bodies of work by various artists always brings me back to times in my life when I was young and creative. My life lay before me as an infinite pattern of branches of potentiality. I was so excited at the fact that i could be anything i wanted to be and looking at others art always generated so many ideas for art of my own.

But life happened, as it does, and most, if not all, of those ideas remain unrequited. As I coast down the hill of middle age, the branches have thinned significantly and I am filled with a sweet sadness, ruing all that i did not achieve. As I consider my terminal diagnosis and the branches become downright sparse, it is tempting to wallow in defeatism. 

 

Margate, New Jersey

Andrea is one of my oldest and dearest friends. I have so much gratitude for her unwavering, indefatigable support from afar. I am also so grateful to have been able to spend time with her lovely, loving little family. Like all of us they have weathered challenging times and they have emerged so strong and bound together by so much love. I’m pretending to have bottled it and am taking it with me to sip from when I need a shot…

“Look who came for a visit… So grateful to to see my dear friend Kai on her “gratitude tour”!” – Andrea

The circle of life…

Sunrise on ferry, full moon still on watch.
Foggy wisps suspend over dappled Delaware fields.
Drying and dying, preparing for winters sleep.
Thermodynamics are busy at play…
Entropy dictates descent into decay. 
While life endures and cycles persist
to create order from chaos.
And every sunrise is a brand new day.

Raleigh, North Carolina

Doris Ann is my shero. She taught me how to fight mets… with everything you’ve got! And don’t forget the lipstick, great hats, and a smile always on your face. It’s nearly 10 years since she was diagnosed Stage 4 and she’s back at the battle once again with a vengeance.

Remember that prayer shawl that Marsha gave me in Minneapolis that the lovely women in her church knit and imbued with prayers? I was honored to present one to Doris Ann that they gave me for her. Isn’t she beautiful in it? So grateful that we’ve both made two circles around the sun since we met… in spite of the odds. Rock on, sister warrior queen!

“Kai, if I am your shero, then surely you must be my ultimate protégé! Smart, inquisitive women like you keep an open mind to new ideas…then research which ones may be worthy of consideration and run with them!

I am grateful that you are not only such a woman, but also that you have far outrun whatever influence I may have had on you initially when we first met. Now you have (rightfully ) earned your own place as a force to be reckoned with, respected, and admired as an uber example and mentor to so many devoted followers. 

Rock on, Rapper Kai! And thanks again for stopping to visit this afternoon (and presenting me with the beautiful prayer shawl from the ladies in Edina, Minnesota)! 
As you continue your journey back home to Colorado, give my regards to one of my favorite NC destinations (Asheville). — and keep on adding new branches each day to your Tree of Life! Mmmmwaa!” – Doris Ann

(Alas, Doris Ann has passed.)

Asheville, North Carolina

Sariya Jade and I first met on the beach in Puerta Vallarta in a magical moment of synchronicity that also brought me June Turnbull (remember the first stop on the Gratitude Tour in Boulder?). The three of us were attending an energetic healing conference and I have been grateful for their healing energies ever since.

I finally got to see Sariya again after 7 years! And what a cool place Asheville is. So here we are… Tan and young in Puerto Vallarta, older and whiter in Asheville, and with two new marvelous cancer sister survivor friends. Both Cynthia and MaryAnne are taking an integrative holistic approach to maintaining wellness. I am honored again in the presence of such strength.

 

 

 

 

 

 

 

Tybee Island, Georgia

Walking the beach this morning, I marveled at the seabirds serenely sunning themselves. I struggled with the temptation to run screaming into their midst to feel the frantic flurry of their fright-filled flight swirl around me. Instead, I stood nearby absorbing the contentment of their full bellies and the fellowship of feathered family. I marveled at the sage and savvy woman I had become. And then silly and sassy emerged, the little girl took over my being, and all hell broke loose. Da woman may never come back. Hahahaa….

 

Vera Paas, Seattle 

My dear friend and fellow sister warrior, Vera Paas, is transitioning to her next assignment in these days. Please send a kiss on the wind to tickle her with love as she moves on. I love you, Vera.

(alas, Vera has passed.)

I Stand Alone

I stand alone, surrounded by shadowy figures.
Like clay soldiers from an ancient Chinese army, they are silent symbols of fallen warriors.
Every time I turn around, there are more.
Diagnosed after me with prognoses better than mine, they have left me behind.
I fight back tears and try not to give in to suffocating feelings of doom and despair.
May they find as much joy and love in their next assignment as they brought to this one.
Because every one of them deserves, perhaps more than I, to be breathing here beside me, and they are not…
Cuz of the brave battles that they waged…
Because I don’t truly understand why I’m still standing… I will battle on.
For them… And for all of my sweet fellow warriors who know exactly what I am feeling.
As I sit here listening to Robert Earl Keen, I am reminded that the road goes on forever, and the party never ends. Party on, Vera…

Florida Panhandle

Like seemingly everyone, Nancy and Warren have loved ones battling cancer. One of my oldest and dearest friends, Nancy actively cheered me on from afar. Visiting them in their new home near the beach, I finally got to take a dip in the ocean. It was so…. invigorating!! And nothing beats a day on the boat! I am grateful for so much. : )

 

 

 

 

 

 

 

The Big Easy

I’m disappointed that I wasn’t able to meet up with my three breast cancer sisters from New Orleans but I did manage to have me some fun… Zydeco two-stepping to Chubby Carrier at the Rock-n-bowl was a highlight. I asked him if he’d play our street dance next spring and he said yeah! So let’s see if we can make it happen. : )

 

Austin, Texas

I love it when people I love meet and end up loving each other! The Gratitude Tour is winding down with a bang in Austin, where so many different friends from different chapters in my life currently live. They all sent me so much love  that Austin became it’s own shining light through my dark nights. Cindy worked with me in the computer business 25 years ago, Lindsey is my daughter from another mother, and the Siegele family is a constant love generator. I am truly blessed.

 

 

 

 

 

 

 

Enchanted Rock, Texas

Hiked to the top with old friends and a new one. Considering I was told not to expect to walk again (let alone live this long), I consider this a huge victory.It is very beautiful up there. What a great last stop before heading home and finishing my 7500-mile loop! I’m the horse heading for the barn now. : ) I am so very grateful for everything, especially this gratitude tour.

 

 

 

 

 

 

 

Home from Gratitude Tour

After 7500 miles… Home! I drove all night to miss the storm and woke up to this. Hard to believe I was bodysurfing in the ocean last week. ? What an amazing trip, this Gratitude Tour…full of so much love! People say that there is nothing about cancer that can be considered a gift and I see their point. But the way I look at it is that it brought all of you into my life and as for those that knew and loved me before… It made me realize just how much. And for that, I am truly grateful! Love and light and strength to all!

Update 2020: I have lost 8 beautiful friends from this gratitude tour. I mourn their loss so. But I am grateful to have walked in their light before they went on to their next assignments.

 

 

 

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